Hello friends! The donkey in this picture followed Daisy all around a living museum in Nazareth. He was so cute and friendly, he even followed us into the little synagogue. They couldn’t resist each other…
We continue to be overwhelmingly grateful for all the help and support we have received to get us here, to allow our girl another chance. We are daily humbled by your generosity, by your love. Please know that not a day goes by that we don’t think of how blessed and thankful we are for you. We look forward to the day we will get to turn around and do the same for others, to share the love you have shared with us to help kids like Daisy fight for their lives. Let’s pray it is soon.
Daisy is holding up well. She has received the Lymphocytes and it was a long week with fevers and some chills as an immune response to the foreign cells. The doctor said she handled it well, so we were pleased with that. I’m dumbfounded by all the treatments Daisy has endured. Such strength. She continues to receive her usual treatments as well. We are planning on leaving Israel soon, provided that all is well, and are praying for a clear scan. Her doctors have given her their safer options, hoping they will provide Daisy with a cure, but can be less efficacious than the riskier options. They say that cancer is a moving target so you need to fight “dirty”, a.k.a. “sneaky”. We have provided Daisy’s body with several “weapons” to get rid of it’s enemy, spies that will hopefully get those cancer cells while they least expect it. So let’s keep praying that these immunotherapies do the trick. We want to come home!
Daisy now has hair long enough for a little bedhead! (And mini faux-hawk). Her spirits are high, and she continues to be easy going, sweet, hilarious, and excited for all the things she wants to do in the future. (Today she asked if she could ride a flying lion or at least just be floated by balloons. ”I’ll hold a rock or something so I don’t float away. Please mom?”) She continues to loathe her frequent shots, understandably, but bravely puts one foot in front of the other. She is having a hard time with her weight lately, losing a few pounds that she barely had in the first place. She’s a wisp. We have spent the past week stuffing her with as much high calorie foods as we can and so it seems to be coming back up again. Also, her little muscles continue to be extremely weak. Those of you who know her may have noticed how the simplest of movements take great effort for her. It’s impossible to gain muscle if you can’t gain weight, which is most likely due to her damaged sole kidney. These things have been an issue for her for a long time, but we need to see improvement soon or recovery will be really really lengthy. The body is so interconnected; I know helping one area can help another, yet sometimes it seems like it’s all just falling apart. Daisy’s doctor has prescribed jumping on the bed twice daily for ten minutes! So we have been faithful with our “workouts”, but even something that should be easy can be extremely frustrating when you cannot jump without assistance and discomfort. I have seen some progress though, as Daisy puts forth all her effort, so, snaps for Daisy!
Please pray for us as we wind down our journey. I’ll give you a nice little list…
1. First and foremost, I will say it again as I have said ten thousand times, HEALING!
2. Weight gain
3. Kidney function, restoration of the damage (she spills needed nutrients)
4. Strength! I want to see my daughter skip, jump, dance without fear and pain
5. That we can finish well. We are homesick, pooped, and ready to come home, but know we must cowboy up. We want to go out strong, confident, and peaceful.
Peace, love, and blessings to all of you from us…